Health Department's "DNA WAREHOUSE"
Bill -
The Good GOP Arguments; The Good DFL Votes
Below:
- The Vote on the
Holberg Consent Amendment
- Photos of
Legislators during the Debate
- What they said...for
or against parent consent.
CCHC was at the legislature talking to members on both sides of the
aisle. There was strong bipartisan support for Rep. Holberg's parent
consent
amendment, just not enough.
It failed 64-69. The other
Republican-offered consent amendments had bipartisan support also, but
less. Those votes are recorded in the House Journal for April 17, 2008.
Please let your legislators know your
thoughts about their votes...and their quotes: rep.firstname.lastname@house.mn
Republicans voting FOR consent
amendment: Abeler,
Anderson B, Anderson S, Beard, Brod, Buesgens, Cornish, Dean,
DeLaForest, Demmer, Dettmer, Drazkowski, Eastlund, Emmer, Erickson,
Finstad, Garofalo, Gottwalt, Gunther, Hackbarth, Heidgerken, Holberg,
Hoppe, Howes, Kohls, Lanning, Magnus, McFarlane, McNamara, Nornes,
Olson, Ozment, Paulsen, Peppin, Peterson, N, Ruth, Seifert, Severson,
Shimanski, Simpson, Smith, Tingelstad, Urdahl, Wardlow, Westrom,
Zellers.
DFL Voting FOR consent amendment: Dill, Doty, Eken, Faust, Gardner,
Greiling, Hilty, Juhnke,
Koenen, Lesch, Lillie, Mariani, Marquart, Masin, Murphy, M, Otremba,
Scalze, Ward
Not Voting: Hamilton (R)
Republicans Voting Against consent amendment: Berns, Erhardt
DFL Voting Against consent amendment: Anzelc, Atkins, Benson,
Bigham, Bly, Brown,
Brynaert, Bunn, Carlson, Clark, Davnie, Ditrich, Dominguez, Fritz,
Hansen, Hausman, Haws, Hilstrom, Hornstein, Hortman, Hosch, Huntley,
Jaros, Johnson, Kahn Kalin, Knuth, Dranz, Laine, Lenczewski, Liebling,
Lieder, Loeffler, Madore, Mahoney, Moe, Morgan, Morrow, Mullery,
Murphy, E, Nelson, Norton, Olin, Paymar, Pelowski, Peterson, A,
Ptterson, S, Poppe, Rukavina, Ruud, Sailer, Seertich, Simon, Slawik,
Slocum, Solberg, Swails, Thao, Thissen, Tillberry, Tschumper, Wagenius,
Walker, Welti, Winkler, Wollschlager, Spkr Kelliher.
Rep. MaryLiz Holberg (leading
the charge for informed consent): My
concern is that the state of Minnesota has put together a database of
our youngest residents. They have the rights to it. They own it."
Rep. Paul Thissen (author of
the bill): The studies
wouldn't be possible if the blood spots weren't stored because these
diseases are not identified till many years later...I understand the
concern about privacy, but....to go down the path of written consent in
any way, or an opt-in, will undermine our ability to proceed with this
very, very successful program."
Rep. John Berns: "My wife and I were sleeping...We were awakened by
our
baby crying...It was a technician doing the test...The technician
said..there were no options...that person didn't do it correctly." (RE:
Oct 2006 incidence with 3rd baby in hospital)
Rep. Dettmer: "I trust parents to make the right decision...I
think it's important we let the parents make that decision."

Rep. Tom Emmer (offering a second consent amendment)
: It is
a
very important privacy issue...This goes right to the heart of the
rights of an individual...We got somebody whose out driving on the
highway with a blood alcohol level above .08. What do we do? They get
pulled over...Can we automatically get a sample of their blood. No. You
have to get their consent.
Rep. Steve Drazkowski:
"Whose DNA is it? Does it belong to the family or does it belong to the
state? It's our responsibility to protect the freedoms of Minnesotans."
Rep. Ryan Winkler (D): "The issue is about whether the rights of
a
parent to make a decision about genetic testing is more important than
the right of a child to have a healthy life...Less testing means more
death, more hearing loss, more growth failure...The issue is the
parent's theoretical interest in privacy more important than the
child's fundamental right to have a health outcome and a healthy life."
Rep. Steve Gottwalt: "The
first right is the right is the parent's right with their child. They
have the ultimate obligation. The parents have the right, not the
state, not the doctor, not the hospital. All we're asking is that we
get informed consent before things are being done....The
parents...deserve the opt-in, not the opt-out. We require more
information on that [opt-out] form than we require for people to vote
in this state."
Rep. Paul Thissen(D): "Because more people opt-out...and in
addition to
do additional research on childhood diseases, for all those reasons if
you require an opt in or a written consent, it undermines our ability
to do those things."
Rep. Joyce Peppin: It's very difficult to even find the
form...makes
it very difficult for a parent to opt-out. Either have to go to a
notory public or a medical professional to get a signature. Perhaps
parents don't want to have to explain why they don't want to submit to
this testing. My amendment is to simplify things."

Rep. Mark Olson: "It's not a state child. It's the parent's child."
Rep. Rob Eastlund:
Rep. Holberg's amendment is absolutely necessary! It took me over 15
min on the health department website to find an opt-out form."