MEDICAL PRIVACY Birth Defects Registries CCHC Testimony on MN Plan to Mandate Genetic Testing of Newborns March 20, 2003 CCHC Press Release: Alarmed by Nevada bill to revoke right to private genetic testing/track "defective" kids April 20, 1999 The 1998 federal Birth Defects Prevention Act - includes summary and sponsors Nevada Legislature - A.B. 238 - to mandate tracking; forbids right to private genetic testing Legislative action in Minnesota 1996 and 1997 Minnesota Birth Defects Surveillance System 1997 Report to the Legislature - excerpts Citizens' Council on Health Care 1954 University Avenue West, Suite 8, St. Paul, MN 55104 Phone: 651.646.8935 / Fax: 651.646.0100, e-mail