PRESS RELEASES
For Immediate Release
Friday, June 2, 2006
CCHC Resolution on Parent Consent for Newborn Genetic
Testing Added to 2006 MN Republican Platform
Saint Paul, Minnesota - Minnesota Republicans today said parent
consent should be required for newborn genetic testing, and for
government collection of infant DNA.
"This is a victory for parents. This is a victory for privacy," said
Twila Brase, president of Citizens' Council on Health Care (CCHC).
"Republicans from across the state have declared that parents have a
right to control whether genetic tests are done on their children and
whether state government gets access to their child's genetic code."
Delegates at the State Convention of the Minnesota Republican Party added
the following language to the State Platform, under the
"Preserving Civil Rights" plank:
"Requiring informed opt-in consent of parents for newborn genetic
testing, or for the Minnesota Department of Health to retain their
children's DNA."
CCHC had sent a similar resolution statewide to CCHC supporters prior to
party caucus meetings in March. The resolution was in response to
learning that the Minnesota Department of Health had failed to
implement a 2003 law requiring hospitals to tell parents they could
opt-out of newborn genetic testing, or choose to have the blood
specimen destroyed and the genetic test results stricken from the
Minnesota Department of Health database. The blood specimens of more than
600,000 children are now considered property of the state of Minnesota.
"We're pleased that Republicans have taken a stand for genetic
privacy and genetic property rights. All that's needed now is for state
lawmakers to write parent consent into law," she added.
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Citizens' Council on Health Care is a non-profit, independent health care policy organization that supports free-market ideas in health care.
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