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ITS MY DNA!
Whether you like it or not, a complete sequencing of newborns is not far away.
Francis Collins, Director, National Institutes of Health, October 26, 2009

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Protect Your Baby at the Hospital - "Newborn Rights" Sign to Post After Birth

50 States - How Long State Government Keeps Your Baby's DNA

National Newborn Genetic Testing Program

Minnesota Newborn Genetic Testing Program

STATISTICS - Objections, Numbers, Dates, and Mayo/MDH Research on Baby DNA w/o Consent

Testimonials - Taking Baby DNA

Newborn Genetic Testing

(AKA "Newborn Screening")


"[N]ewborn screening is the largest genetic testing effort in the nation and is primarily performed by state public health laboratories."

- Genomics and Disease Prevention, a book published on the website of the U.S.
Centers for Disease Control and Prevention

Taking Baby DNA; Photo from 2005 MN Department of health provider manual




One Baby says "Help! The Gov't Has My DNA"

 

TAKE ACTION - Find Out How Your Baby's DNA is Being Used

Baby DNA Court Ruling Disregards Constitutional Rights

CCHC Opposes Lack of Consent Requirements for Storing Baby DNA - Public Comments to HHS

CCHC Opposes Baby DNA Banking in Comments on HHS Proposal

Newborn DNA Sent to U.S. Military for Law Enforcement Database without Parent Consent

Texas Department of Health to destroy newborn bloodspots to settle parent lawsuit

Judge's Ruling Supports Government Violation of Minnesota Genetic Privacy Law

Plantiff's Memo of Law on MN Baby DNA Lawsuit - Submitted by Attorney Randy Knutson for 10/9/09 Hennepin County Court Hearing

HHS Proposes to Set National Policy to Permit State Government Retention of Newborn DNA - WITHOUT Parent Consent Requirements.



Diana Waletzko at the Citizens' Council on Health Care Press
Conference on Protecting Baby DNA. Tuesday, August 4, 2009.


Special Documents

Mayo Clinic Documents Opposing Consent Requirements

Not without my Permission: Parents' Willingness to Permit Use of Newborn Screening Samples for Research

Real Life Stories - Taking Baby DNA

50 States - How Long State Governments Keep Baby DNA


National Newborn Genetic Testing Program

GLENN BECK PROGRAM interviews CCHC president:
"Who's DNA is it Anyway?

Newborn Genetic Screening - The New Eugenics? (2009 CCHC REPORT)

The Untold PKU Testing Story...and Why it Challenges Government-Mandated Newborn (Genetic) Screening (2008 CCHC REPORT) A Critical Analysis of the Implications for Genetic Privacy and Consent Rights in Congress' Proposed 'Newborn Screening Saves Lives Act of 2007' (2008 CCHC REPORT)

Thus far, the state of Minnesota has illegally collected and claims ownership to the DNA of 780,000 children (soon to be voting adults) and has provided the DNA of 42,210 children to genetic researchers without parent consent. Approximately, 73,000 children are born in Minnesota every year. About 4.2 million children are born across the nation. All of them are losing their genetic privacy and DNA ownership rights. Listen in to an interview of Twila Brase, president of CCHC, as she discusses what's at stake for all citizens in the pending legislation.

Twila Brase (CCHC President)

 

Minnesota Newborn Genetic Testing Program

When will Governor Pawlenty protect the genetic privacy and DNA property rights of Minnesota's youngest citizens?


Parents and citizens attend court hearing to support nine-family
lawsuit charging MN Dept of Health with violating state genetic privacy law.
MN Dept of Health asked judge to dismiss the lawsuit. Judge has 90 days to rule.

PETITION - Opposing Repeal of the Minnesota Genetic Privacy Law

Parent consent for storage and use of newborn DNA should be required

State IRB Documents Reveal Research on Baby DNA Without Consent

Nine Families Sue State of Minnesota over Genetic Privacy Violations

Background/Pending Legislature on Baby DNA in Minnesota

CCHC Press Conference Challenges Illegal
Government Baby DNA Warehousing

CCHC calls on Governor Pawlenty to require health department compliance with state genetic privacy law for baby DNA - 12/10/08

(To Contact Governor Pawlenty)


CCHC Legislative Archives - Baby DNA



Tell CCHC you took your child out

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Forms for MN Parents


Key Information

The Newborn Screening Card - card for collecting five bloodspots




CCHC Activities in Support of Privacy Rights, Parent Rights, and DNA Property Rights

2007
2006
2003

Migration of Health Department Forms due to public opposition/CCHC's efforts

Refuse Testing

Require Disposal of Blood and Test Results

Hospital Instructions on Newborn Screening



Citizens' Council on Health Care
1954 University Avenue West, Suite 8, St. Paul, MN 55104
Phone: 651.646.8935 / Fax: 651.646.0100, e-mail